Virginia Pertillar serves as the Executive Director of Citizens for Quality Sickle Cell Care SCDAA Northern CT Chapter, Inc., where she plays a pivotal role in enhancing the quality of life for individuals affected by sickle cell disease. With a strong focus on community outreach...
Virginia Pertillar serves as the Executive Director of Citizens for Quality Sickle Cell Care SCDAA Northern CT Chapter, Inc., where she plays a pivotal role in enhancing the quality of life for individuals affected by sickle cell disease. With a strong focus on community outreach and development, Virginia oversees the daily operations of two offices, ensuring that programs and events are not only well-planned but also effectively implemented to meet the needs of the community. Her expertise in grant writing and fund development has been instrumental in securing resources that support innovative initiatives aimed at improving patient care and education.
One of Virginia's key projects includes the production of a monthly online TV program that raises awareness about sickle cell disease, providing valuable information and resources to patients, families, and healthcare providers. This initiative not only highlights the challenges faced by those living with the condition but also showcases success stories and advancements in treatment options. Virginia's collaboration with UCONN Health Center's New England Sickle Cell Institute further strengthens the organization's mission, as she actively engages in research and advocacy efforts that promote better healthcare practices.
Her diverse skill set, which includes proficiency in Microsoft Office, social media marketing, and event planning, allows her to effectively communicate and connect with various stakeholders, from board members to community partners. Virginia's passion for community service, combined with her inquisitive nature and love for adventure, drives her to explore new avenues for outreach and education, ultimately fostering a more informed and supportive environment for those affected by sickle cell disease.